Hi Blog, We Meet Again…

Well, it’s been 4 and 1/2 months since I’ve written here.  This will be a long entry about why. 🙂

Many of you who read this blog regularly already know, but for those who don’t, from January 19th to April 1st I was in the hospital.  The last post on my blog leads right into this one, because I was writing about fighting illness, and 2 days later I collapsed and was taken to the ER.  It turns out that some of the problems I was having were due, at least in part, to bacterial meningitis.  While in the hospital, the bacterial meningitis caused my brain to swell up, and my breathing trouble turned into pneumonia.  The pneumonia turned into Acute Respiratory Distress Syndrome, and they wound up putting me in an induced coma state, which I was in for 4 and 1/2 or 5 weeks.

Waking up was a slow process.  I started to wake up around the 28th of February, my wife Jeanne says, but there was about a week or so where I was awake but not very responsive, but slowly started asking some questions and responding to some questions with witty one-liners , but shortly after that I got a secondary infection that wiped me out for a couple more days, and I don’t really have any clear recollection of anything until early March when I started to become a little more lucid.  Once they’d determined that I hadn’t suffered any brain damage from the bacterial meningitis they started me on a series of different rehabilitation therapies (physical therapy, occupational therapy, speech therapy, swallow studies, things like that) which I did for a while in the acute care ward, and then moved to the rehab ward for a couple more weeks of PT and OT.

Shortly before being released back into the wild on April 1st, Jeanne helped me post on Facebook – what I wrote is here, if you’re interested.

Once I got home, I spent a month going to out-patient physical therapy, which I finished in early May.  I’m still going to dialysis 3 times a week, due to the damage my kidneys took during my illness.  There’s still hope they could rebound and heal themselves, but right now we have to move forward as though I’ll need dialysis forever, just to be safe.

SO.  Life has changed a lot in the last 4 and 1/2 months since my last blog post!  🙂  Now I’m doing physical therapy exercises at home and lots of walking to try and get my strength back.  I’m almost to the point where I don’t need a nap daily.  I’m using my cane for walking less, and soon won’t need it (although everyone wants me to get a cool cane with a sword in it!).  My kids can still beat me in arm wrestling, and we’ve had to buy me new pants because I lost 47 pounds in the hospital!  Still, life is darned good.  I’m slowly starting to do some work back at the theatre, getting better at the new diet I’ve got to live by, and trying to gain some muscle weight back!

This has been the most amazing experience, even though there is a huge part of it that I have no recollection of at all.  (I remember Jeanne taking me into the Emergency Room on January 19th, and I threw up.  The next clear memory I have is waking up in early March with people looking down at me, wondering what happened.)  During the time I was down, my family and I received the most amazing amount of support and love from friends and family… it was, and continues to be, simply overwhelming.  Cards, food, messages, chores, errands, money, prayer quilts, helping with kids and their travel needs, the list goes on and on.  My friend Emily started a thing called “Team Tony”, and created a t-shirt with my image on it for people to buy as a fundraiser to help my family cover medical bills.  That took off and, amazingly, 693 shirts were sold and $14,000 was raised.  Everyone started posting pictures of themselves wearing their Team Tony shirts, and it was the most wonderful, uplifting thing in the universe to wake up in the hospital and have my wife and family share this amazing outpouring of generosity and love with me.  I truly believe this massive positive energy helped me recover and heal, and it’s been the most life changing experience in the world – I’m so incredibly grateful.

So.  This is the longest post ever.  I’ll end it here.  But I’m hoping to be posting a lot more regularly – this experience has been such an eye-opening journey.  I have so many people to thank, and so much more I’m looking forward to sharing about it and, to be honest, I’m still processing it all.  Not a day goes by that I don’t re-realize how lucky I am to be here right now, and how all of this time with my family and friends is a gift that I almost didn’t get.

It’s good to be back.

14 thoughts on “Hi Blog, We Meet Again…

  1. fauxmeonce May 30, 2014 / 8:34 am

    You might think it’s long, Tony, but it’s not! I remember seeing that Facebook post and am glad I caught sight of this update. What a remarkable recovery. It sounds like you and your family were tremendously blessed throughout your hospital stay and that has got to be such an encouragement!

    I vote for a cane with a sword in it too!

  2. Patrick Moug May 30, 2014 / 9:20 am

    So glad to hear you are still recovering and getting stronger ! All the best thoughts and prayers continue for you and your family –

  3. kateherself May 30, 2014 / 10:19 am

    Beautiful, Tony!

  4. Debbie Secord May 30, 2014 / 1:44 pm

    So glad to hear how well you are recovering and it’s been amazing just watching Team Tony and all who love and support you and your family. You’ve made an impact on a lot of lives, Tony. 🙂

  5. Taras Los May 31, 2014 / 12:46 am

    Kidneys are shaped like beans. Beans are magical. Your beans will heal. If you fought off bacterial meningitis, David Copperfield ain’t got nuthin on you. Go magic kidneys!

  6. David Kanigan May 31, 2014 / 5:45 am

    Wow Tony. I didn’t know. I’m glad that you are back and posting. Here’s to your good health.

  7. Tony Caselli May 31, 2014 / 11:14 am

    Thanks Emilee! I think too many people are willing to trust me with a sword… 🙂

  8. Tony Caselli May 31, 2014 / 11:14 am

    Thanks, Pat! I hope all is well with you and yours.

  9. Tony Caselli May 31, 2014 / 11:15 am

    Aw, thanks Kate. YOU’RE beautiful! Hug those boys of yours for me!

  10. Tony Caselli May 31, 2014 / 11:15 am

    Thanks a ton, Debbie!

  11. Tony Caselli May 31, 2014 / 11:16 am

    Taras, your logic is perfect, and I hope you’re right! 🙂 Thank you!

  12. Tony Caselli May 31, 2014 / 11:16 am

    Thanks David, I appreciate it!

  13. Kurt and Pete Guter June 3, 2014 / 2:03 pm

    You are amazing, Tony!! So happy to “hear” your voice again and to know that you’re back home and almost back at the theatre as well. We’ve missed you a bunch and have been sending healing thoughts and energy your way. Keep up the good work!!

  14. Tony Caselli June 4, 2014 / 9:54 pm

    Kurt and Pete, thanks so much for those kind words! I appreciate SO MUCH everything you guys do for the theatre, and for your wonderful energy.

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